Your support will mean so much to so many…

On the 22nd October 2008, Jim Demirov’s life changed forever.

Jim was passionate about three things: his family, fitness and cars. He adored his two children and devoted wife, had a black belt in karate and ran his own successful mechanic business.

But nothing could have prepared him for the heartache and frustration that would follow his diagnosis on that fateful Wednesday.

Motor neurone disease (MND) would not only rob Jim of his passions, it would also take his independence and eventually, his life.

 

On the 22nd October 2008, Jim Demirov’s life changed forever.

Jim was passionate about three things: his family, fitness and cars. He adored his two children and devoted wife, had a black belt in karate and ran his own successful mechanic business.

But nothing could have prepared him for the heartache and frustration that would follow his diagnosis on that fateful Wednesday.

Motor neurone disease (MND) would not only rob Jim of his passions, it would also take his independence and eventually, his life.

 “To watch my father and best friend, a very active man, become isolated and confined to his home was incredibly heartbreaking for all of us,” recalls Jim’s daughter, Shelly-Anne.

 Bit by bit, simple pleasures like taking a stroll in the local park became overwhelming and frustrating for Jim – his mind eager to move, but his body unwilling to cooperate. Gradually his ability to speak, swallow, and breathe was also taken from him by the disease.

“Dad fought courageously to live for his family and took on everything MND threw at him,” Shelly-Anne says.

 Although Jim knew a cure was not possible in his lifetime, he wanted to offer hope to others by getting involved with NeuRA while he was still strong enough.

“Dad believed wholeheartedly in research and was proud to be able to help in some way. His hope was that one day no one would have to suffer through the horrendous disease like he did,” Shelly-Anne says.

 Jim’s wish was for Shelly-Anne to reach as many people as she could to raise awareness of the importance of research in finding a cure for devastating diseases like MND.

Sadly, Jim passed away at the young age of 59. But his relentless support of important research lives on in his daughter and through the Sydney Brain Bank here at NeuRA.

NeuRA is one of Australia’s leading brain research institutes and the Sydney Brain Bank collects, stores and distributes brain and spinal cord tissue specimens to top researchers in Australia and around the world.

Working closely with national and international medical research institutions, the Sydney Brain Bank enables world-class research to take place – offering hope to millions of people like Jim in finding a treatment or cure for neurodegenerative diseases like MND, dementia and Parkinson’s, among others.

We currently have 650 brains stored in our facilities and in 2019 we supplied over 5,000 precious samples to researchers in Australia, Sweden, France and the US.

Our collaboration with the best researchers around the world since 2009 has resulted in over 300 publications and presentations at scientific conferences and public forums using Sydney Brain Bank brain tissue. Of these, nine research publications have been specific to MND – moving us closer to a potential breakthrough in a cure for this debilitating disease.

In life Jim Demirov was a fighter. Will you help Shelly-Anne and NeuRA in this critical fight  to find answers to MND?

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